What name is given to the disease?
Estimated numbers of patients
Status of recognition
There is a great lack of knowledge in Public/National Health Care.
Specialism used to treat ME
There are isolated professionals who know the pathology but who are lacking in support to care adequately for patients. Unattended patients are usually referred to mental healthcare and family members end up doubting about the disease. No specialty and no units exist that makes the diagnosis and/or follow-up of patients.
Average time before diagnosis
Diagnostic delay between 2-10 years. Specialism used to treat ME
No diagnostic criteria are implemented
Disability status of patients
To receive disability aids is difficult, even in severe cases, and patients must appeal judicially to get benefits.
There are private centres that begin to treat patients in a multidisciplinary way. These groups are committed by using the term “Central Sensitivity Syndrome” where they cluster Fibromyalgia, ME/CFS, Migraine, Irritable Bowel Syndrome ....